I am running a half marathon on October 18th to raise money and awareness for Prader-Willi Syndrome research.
For those who may not know, my awesome nephew, Graham, has Prader-Willie Syndrome (PWS). PWS is a rare genetic disorder where children are born with low muscle tone, experience developmental delays, and cognitive and behavioral issues. Worse, PWS suffers have an insatiable appetite combined with low metabolic rates that lead to life-threatening obesity. PWS children go through life always hungry.
Graham is almost 3 and he is a bundle of joy. My sister and brother-in-law work tirelessly to do everything they can to find a cure. His beautiful big sister is always doing her part to help out. Graham spends a lot of time in physical, occupational, and speech therapy. He has a long way to go, but with the continued research and awareness, we are confident there will be a cure.
I would truly appreciate your support as I run to raise awareness for PWS. To run 13.1 miles is nothing for me, compared to the struggles that Graham, others with PWS, and the families that support them, are faced with everyday. This is the least I can do to support my main man, Graham.
This link has been established to raise funds for an annual “One Small Step” walk done every year. You can donate here and also find some more information about PWS and how you may be able to support.
Thank you so much for taking the time to learn more.